This site was originally created to keep our friends & family up-to-date with Abram's unique medical condition. I had no idea that his journey to diagnosis would inevitably throw my son's story into the forefront of the fight for medical cannabis in Iowa or that we would become dedicated advocates for an extremely rare medical condition called UBE2A Deficiency Syndrome.
Thank you for coming and we hope that you'll be back. We enjoy sharing our story with you and I am grateful for the people this journey has brought into our lives!
If your child was diagnosed with UBE2A Deficiency Syndrome and you'd like to connect with families on the same path, please find our parental support group on Facebook.
Our journey with Genetic Counseling and having a rare diagnosis has also been published on The Mighty.