If you have a child with special needs, a rare genetic condition or a chronic illness, you probably have already heard of "The Mighty" website and all that they do to share awareness to such things. If you haven't heard of it, I highly suggest you check it out! They have many conditions listed in alphabetical order, so if you have a loved one with a life-changing medical condition - look it up! You might just learn something and gain a new perspective as well!
I have read countless stories and articles within those pages that I could relate. Their website has single-handedly helped me to not feel so alone in our journey of a rare diagnoses in addition to the very real struggle of special needs parenting. I am honored and thrilled to say that the piece I wrote on Genetic Testing was published on The Mighty! I hope that I can continue to contribute to such a wonderful community of special needs parents, as I've already met several other parents who could relate to what I had written. Much Love, Erin You can click on the link below to go right to their page! Wonderful site with everything alphabetically organized by diagnoses/illness. |
About MeHello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis. MOST POPULAR BlOG ENTRYJOIN US
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