Hello, Friends! I just wanted to share that today Abram had an awesome day at Therapy! He said "UP!" to his speech therapist and mimicked "Ohhhhhh" in the mirror for the FIRST TIME EVER! He's been seeing her for over six months and today was the day he actually said a word in front of her. Sadly, she told me that she is leaving and we'll have to start over with a new Speech Therapist but HE VERBALIZED today and that was huge. He'd gone months without making much noise or babbling so we were getting very concerned and then all of a sudden he was making "brrrrrrrr" noises all day yesterday. I'm excited about that. He also actually pedaled the trike with his Occupational Therapist today as well! He wanted to keep going down the hall even! So, we need to get on the ball and get the adaptive pedals for his trike so we can do the same at home. Right now he's still a little too small to reach the pedals so he needs some adaptive equipment to add on to the pedals to make 'em taller and to also strap his feet to them since he has Hypotonia it's easier for him to be strapped on for ease of movement! His OT sent us a link to some pedals that should work so we need to get those ordered soon so we can get him some good 'ol fashioned toddler exercise. I went through all of his medical records tonight and have everything ready to go for Minnesota next week. Even made the hotel reservation for Tuesday Night as I plan on going up a day early to try to have an afternoon of fun with him before we're confined to one floor of a hospital! This kid loves being outside so i need to get in as much outside time as possible before we are admitted! Everything is coming together nicely. Thank you so much for your help and for sharing Abe's story. You are amazing. |
About MeHello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis. MOST POPULAR BlOG ENTRYJOIN US
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