Hey Everyone! We hope you had a safe holiday weekend. It was wonderful for us as Abram didn't have therapy or doctor's appointments for the first time in years. It was wonderful! We didn't do much but cook delicious food, spent time with our family and did a lot of swinging and playing with firetrucks.
He is officially over the 150 days seizure free mark and doing well in all of his therapies. His goals with his Speech Language Pathologist have totally been revised, we are learning new pressure point techniques with his Occupational Therapist and his Feeding Therapist is getting ready for him to work with and try an entirely different food group. We just finished up with "red" food. I'm curious to see what will be next?!
Epilepsy Awareness Month is officially over today but it came to a bitter-sweet end as a little article I wrote got published in the Cedar Rapids Gazette. You can read the full article, here.
We don't have much else to report because the last week has been a fantastic reprieve away from the reality of therapies and appointments and a lot of time driving back and forth to all of it. The weather is starting to turn which always makes winter driving more difficult but the outcome is so worth it. We even interviewed with ChildServe today (where Abram gets the majority of his therapies) and they will be doing a story on Abram and his success with walking! One year ago, Abram wasn't independent at all and now he is practically running.
Time flies. Life is Good. Enjoy your December!!!!
Hello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis.
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