Just a few months ago we were told by an Orthopaedic Surgeon that my son had nerve damage from his traumatic birth (ahem - hospital negligence) and that there was nothing that I could do about it. "You can do Physical Therapy until you're blue in the face and it won't do a thing." is what he said to me after spending less than 5 minutes with my son.
All I have to say to him is YOU WERE WRONG! NANA NANA BOO BOO! STICK YOUR HEAD IN DOO DOO! Clearly, that is my mom version... as my real version wouldn't be pleasant at all to read!
<------ BUT LOOK! He is able to pull himself up! That is such an amazing feat and one that I thought wouldn't happen for quite a while longer! Our 16-year-old cat isn't as thrilled about it as we are... but it's so awesome!
It makes me feel like a proud mama that if you really work at something... big changes take place. It makes me proud that I didn't listen to some overpaid jerk who made $750+ in the literal 300 seconds he spent with us. It makes me wonder how many people do listen and do give up when the "professionals" tell them such things?! This just means that our little man is getting stronger and he'll be walking before we know it!
Abram is officially getting Physical Therapy and Occupational Therapy in our home as well as privately at Child Serve and will also be staring Speech Therapy this month as well! I'm excited to add that to our weekly schedule and list of things to kick-ass in!
Also.. Abram's Father and I are GETTING MARRIED! We are having a private ceremony in NE Iowa, where it will be peak leaf season! It is going to take place on a cliff overlooking the river and the beautiful bluffs filled with fall colors. I cannot wait and Saturday cannot come soon enough! Then we'll be staying in a beautiful Bed and Breakfast owned by a family member in a tiny town on the Mississippi. It's a fabulous Victorian Home that we will have to ourselves for THREE DAYS!!! THE WHOLE PLACE! Wooooo! We are looking forward to it! So the next time that I write, I will be a married woman.
Then - in even bigger news..... Abram is getting into the Univeristy of Iowa's Children's Speciality Clinic to meet with a Neurosurgeon (who also happens to be the Professor of Neurosurgery there) AND a Neurologist (the Assistant Professor of Neurology) on Wednesday! I am looking forward to getting a second opinion from two men who are specialists in their fields and both of whom have been voted Best of 2013 Doctors.
So that is a damn good start to next week.
Until then... take care of yourselves..
Hello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis.
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