Our follow-up with Neurology today went phenomenally. All is good - no seizures - no pharma. In another month it will be TWO YEARS since we started cannabis and changed Abe's life.
Endocrinology was a SHOCK. Abe was borderline failure to thrive as an infant. His lack of growth, global delays and short stature were a major concern to his Endocrinologist. She even recommended growth hormone injections last year -to which I declined. Today.. He is ON THE CURVE. He grew over 4 inches. His height and weight are "normal". NORMAL. I have no doubt that cannabis played its part in this part of his health, too. With healing the brain comes so much good - his cortical dysplasia be damned!! The bad part?! Abe flipped out when the sweet nurse tried to measure his head. Too many EEGs and PTSD makes this kid lose his mind at the sight of a tape measure. In the struggle, she accidently knocked out his loose tooth. (see photo!) He swallowed a lot of blood during the whole ordeal and after working himself so badly during the blood draw, he vomited multiple times all over blood lab. It was awful. The nurses took it like champs..... but at least it is the kind of awful I can handle with a little clean up. We gotta focus on the positives and that is this: Abe is continuing to receive POSITIVE medical reports since we started cannabis when before - we had nothing but difficult appointments with bad news and worsening medical conditions. Cannabis is Medicine! |
About MeHello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis. MOST POPULAR BlOG ENTRYJOIN US
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