Riding a bike gives him a freedom he doesn't know in other aspects of his life. His face lights up. His little feet go as fast as possible and he flies! On an adaptive trike, he is able to just be a little boy with the wind in his face and the wonderful feeling of just speeding down a hill pedaling as fast as he possibly can. He doesn't have to worry about what his feet are doing because they are strapped in. He doesn't have to try hard to keep his hands on two separate handles as he has an adapted steering wheel on his trike as well. When he's on his bike - it is the only time in his life where is truly just free to be a little boy. It is the best thing to watch and something he worked SO HARD on to be able to do.
After participating in last year's Variety Telethon, my husband took it upon himself to start an employee giving program at his place of employment and last fall we were able to gift another little boy with a similar chromosome disorder his very own adaptive trike as well. It was the best feeling to see my husband do something so wonderful for another family and to get his employer involved in such a wonderful local charity that not only gifts adaptive trikes to special needs kids but they also provide funding for vans to transport children to doctors appointments and therapies, they work with Iowa communities to prove all-inclusive playgrounds, they help provide equipment and building expansions to much-needed therapy centers in Iowa and they help families who are struggling with the expenses of having medically complex children. Being able to participate in a tiny part of what they do makes me incredibly proud and happy.
In the fall, we were asked to participate in their new ad campaign. In all honesty, Abram had a hard time with the photoshoot and became overwhelmed, very agitated and cried so we were worried that they wouldn't be able to use his photos at all.
It turns out, he is on multiple billboards across the city and is in several different ads as well. We've driven around just to go and see them. There's just something so amazing about seeing him glowing in the night on an electronic billboard - it is literally a giant glowing example that NO doctor can set limits on what your child can or can not do. The only person that will dictate where Abe will go in life and what he will do is Abe. We are just here for the ride.
Abe - You are the light of my life and I am so proud of you. You work so hard to achieve your goals and no matter how difficult the road is - you do it with a smile on your face.
If you are interested in learning more about the Variety Club, please visit their website: varietyiowa.com/learnmore!