I've never met another human more determined, hard-working and filled with love than my son. They said he may never walk. They said we could do PT until we were blue in the face and it wouldn't make a difference. They said he had a "cognitive disconnect" and that he'd never understand that a picture represents an object. Now he's riding an adaptive trike, walking up stairs alternating feet, going down them with assistance and he can jump. Now he's using sign language, picture exchange and using a communication device to tell us what he wants. Never let anyone tell you what your child will or won't do... Even if they have special initials behind their name. Abe will do all the things he was meant to do, when he is ready to do them and I will celebrate all the tiny-to-most (but HUGE to us) milestones in his life. He has taught me to slow down, to appreciate the little things, to love hard and to forgive easy. He also taught me there's a reason to smile every single day no matter how bad of a day you've had. You've just gotta keep your chin up, surround yourself with people who make you laugh and love the little things in your life that make up the big things. Thanks Abe. You changed my life. |
About MeHello! My name is Erin. I am Abram's mom, a tireless advocate for UBE2A Deficiency Syndrome and a fierce proponent for medical cannabis. MOST POPULAR BlOG ENTRYJOIN US
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